L.R. Hill1,3, T.A. Nakano1,2, A. Annam3,5, M. Klos4, A.M. Kulungowski1,3 1University of Colorado School of Medicine, Division Of Pediatric Surgery, Aurora, CO, USA 2University of Colorado School of Medicine, Department Of Pediatrics, Center For Cancer And Blood Disorders, Children’s Hospital Colorado, Aurora, CO, USA 3Children’s Hospital Colorado, Vascular Anomalies Center, Aurora, CO, USA 4Children’s Hospital Colorado, Clinical Application Services, Aurora, CO, USA 5University of Colorado School of Medicine, Department Of Pediatric Radiology, Aurora, CO, USA
Introduction: Vascular anomalies have a negative impact on quality of life and incorporation of patient-reported outcome measures (PROMs) into healthcare planning can provide insight into this burden. Integration of PROMs is hindered by lack of electronic health record (EHR) infrastructure that allows for easy visualization of PROM scores. An interactive EHR tool was customized to incorporate Patient Reported Outcome Measurement Information System (PROMIS) scores into real-time clinical decision-making.
Methods: A customizable tool displayed within an existing EHR system was developed to collect and display PROMIS scores.Surveys are assigned by attaching questionnaires to an encounter or sent via a patient portal messaging system. Patient responses automatically flow into an interactive display item, allowing healthcare providers access to graphical representation of scores over time as well as item-level responses.
Results: A PROM display tool was successfully incorporated within our institutional EHR. Prospective collection of PROMIS measures is now programed to occur at impactful timepoints in patient clinical care. While the PROMIS questionnaire display tool is in a pilot stage, monitoring patients’ PROMs responses has proven beneficial to understand the patient experience with vascular anomalies.
Conclusion:Use of PROMs should be considered a part of health maintenance in patients with chronic diseases to understand the impact and improve the quality of life for patients with vascular anomalies. Presented is a method for capturing PROMIS measures within the EHR that allows for efficient access to survey scores and has been impactful on real-time clinical decision making.